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If you would like information on other resouces available through the Pediatric Palliative Care Service such as book, journals, and support group, please contact us at (902) 470-7262 or (902) 470 8942.
Websites
For additional information about pediatric palliative care, hospice palliative care, or grief/bereavement the following websites might be helpful:
National standards of Practice for Pediatric Palliative Care are available through the Canadian Hospice Palliative Care Association (CHPCA) at: http://chpca.net/.
Provincial associations may be located through the CHPCA website or directly:
Nova Scotia: http://www.nshpca.ca/
New Brunswick: http://www.nbhpca-aspnb.ca/
PEI: http://www.hospicepei.ca/
Canadian Virtual Hospice - Information and support on palliative and end of life care, loss and grief: http://www.virtualhospice.ca.
The Canadian Network of Palliative Care for Children offers information on palliative care initiatives and programs across the country: http://cnpcc.ca/.
Childendoflifecare.org/: This site provides overviews of the essential components for providing quality care, new interventions that promote support and comfort, and methods of care delivery that consider a family-centered approach to care at the end of a child's life.
American standards of practice and other resources for pediatric palliative care are available through the National Hospice Palliative Care Organization (NHPCO) and Children’s Project on Palliative/hospice Services (ChiPPS) at http://www.nhpco.org/i4a/pages/index.cfm?pageid=3409.
ACT is one of the leading organisations working nationally to achieve the best quality of life and care for all children and young people who have a life-limiting or life-threatening condition and their families: http://www.act.org.uk/default.asp.
Camp Odonata: a grief support camp in Wolfville. http://www.campodonata.ca/
Grief Nova Scotia: a provincial network of grief support gorups and resources. www.griefns.com
Alex's Safe Harbour: a charitable organization which is working to provide support for child and teen grief in the HRM community. www.alexssafeharbour.com
For educational initiatives related to Pediatric Palliative Care, the following might be considered:
The Initiative for Pediatric Palliative Care: http://www.ippcweb.org/index.asp
End of Life Nursing Education Consortium – Pediatric Palliative Care: http://www.aacn.nche.edu/ELNEC/UpcomingTrainings.htm
The IWK PPCS is the recipient of the 2010 Rotman Award, with which we will provide educational programs for health professionals in the Maritimes via telehealth and site visits. If you are interested in participating in any of these opportunities, please contact us through our main office number: 902-470-7262.
If you have any questions about our service or resources that are available, please do not hesitate to contact us!
